About

Our History

In 2012 representatives (neonatologists and pulmonologists) from the seven founding Centers (Brown, CHOP, Colorado, Johns Hopkins, Children's Mercy, Nationwide Children's, and Texas Children's) met for lunch at the PAS meeting in Boston to discuss how to improve outcomes for patients with established severe BPD.

We agreed that despite abundant research and novel strategies in preventing BPD, there was a paucity of research or evidence regarding the clinical course and management of established BPD and particularly its severest forms. This is in part because severe BPD is relatively uncommon, and no single center has a large enough population to conduct sufficiently powered clinical studies. So, we agreed to work together as the BPD Collaborative to address the multitude of gaps in our knowledge related to severe BPD.

Participating Hospitals

Participating Clinicians

Types Of Disciplines

Collaborative Highlights

In August of 2012, we started meeting via monthly teleconferences.
In 2013 we had our first in-person meeting at Children's Hospital of Philadelphia.
In 2014, we developed our charter that was built around our vision – to work together to eventually cure severe BPD by filling in the gaps in our knowledge related to disease course and clinical care.
In 2017, we published a comprehensive review in the Journal of Pediatrics (volume 181, pages 12-28.e1), setting out our shared vision for the interdisciplinary care required for children with severe BPD.
Over the years, we have grown from 7 centers to 26 centers and over 200 individuals, we have developed and implemented a Registry, and we have published peer reviewed articles and presented abstracts at PAS and ATS since 2018.

Executive Board

Leif Nelin – Chair
Nationwide Children’s Hospital
Columbus, OH

Steve Abman – Vice Chair
Children’s Hospital of Colorado
Denver, CO

William Truog – Treasurer
Children’s Mercy Hospital and Clinics
Kansas City, MO

Milenka Cuevas Guaman – Secretary
Texas Children’s Hospital
Houston, TX

Huayan Zhang
Children’s Hospital of Philadelphia
Philadelphia, PA

Laurie Eldredge
Seattle Children’s Hospital
Seattle, Wa

Paul Moore
Vanderbilt University Medical Center
Nashville, TN

Martin Keszler
Brown University
Providence, RI

Sharon McGrath-Morrow
Children’s Hospital of Philadelphia
Philadelphia, PA

Standing Committees

Advisory Committee – includes non-members of the BPD Collaborative to advise the Executive Board on matters related to mission, vision, and/or direction of the BPD Collaborative.
Advocacy Committee – advocate for patients and families with sBPD at the community, regional, state, and national level.
Education Committee – development and implementation of educational content and curricula.
Care Committee – oversee the development of care standards, regionalization of sBPD care, and development of QI projects.
Publication Committee – oversee the dissemination of the work of the BPD Collaborative.
Data Committee – oversee access to the BPD Collaborative Registry and development of the research program.
Membership Committee – responsible for recruiting and recommending new full member institutions to the Steering Committee for vote. The committee is also responsible for the recruitment and approval of new Associate Members.
Website Committee – responsible for the BPD Collaborative presence on the internet and social media.
Development Committee – responsible for fundraising.
Committee on Committees – responsible for oversight of all standing committees, including membership, functioning, and recommending dissolving current committees or creating new committees as needs change.
Bylaws Committee – responsible for amending bylaws, will consider and recommend bylaw amendments to the Steering Committee for the vote.

Ad Hoc Working Groups:

Epidemiology and Definitions

Pharmacology

Nutrition

Pulmonary Hypertension

Ventilator Strategies

Nursing Bedside Team

Outpatient Transition

Neuro Developmental

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