About

The BPD Collaborative

Our History

In 2012 representatives (neonatologists and pulmonologists) from the seven founding Centers (Brown, CHOP, Colorado, Johns Hopkins, Children's Mercy, Nationwide Children's, and Texas Children's) met for lunch at the PAS meeting in Boston to discuss how to improve outcomes for patients with established severe BPD.

We agreed that despite abundant research and novel strategies in preventing BPD, there was a paucity of research or evidence regarding the clinical course and management of established BPD and particularly its severest forms. This is in part because severe BPD is relatively uncommon, and no single center has a large enough population to conduct sufficiently powered clinical studies. So, we agreed to work together as the BPD Collaborative to address the multitude of gaps in our knowledge related to severe BPD.

Participating Centers
Over
Participating Clinicians
Types Of Disciplines

Collaborative Highlights

  • In August of 2012, we started meeting via monthly teleconferences.
  • In 2013 we had our first in-person meeting at Children's Hospital of Philadelphia.
  • In 2014, we developed our charter that was built around our vision – to work together to eventually cure severe BPD by filling in the gaps in our knowledge related to disease course and clinical care.
  • In 2017, we published a comprehensive review in the Journal of Pediatrics (volume 181, pages 12-28.e1), setting out our shared vision for the interdisciplinary care required for children with severe BPD.
  • Over the years, we have grown from 7 centers to 46 centers and over 400 individuals, we have developed and implemented a Registry, and we have published peer reviewed articles and presented abstracts at PAS and ATS since 2018.
BPD Historical Growth Graph

Executive Board

The BPD Collaborative

     Leif Nelin, MD        Chair
Nationwide Children’s Hospital
Columbus, OH

The BPD Collaborative

     Steve Abman, MD             Vice Chair           Children’s Hospital of Colorado
Denver, CO

I am a member of the BPD Collaborative because of my interest in the pulmonary outcomes of children born prematurely. As more infants survive the NICU with more severe lung disease, we recognize that there is a greater spectrum of pulmonary disease across the lifespan.
I am a member of the BPD Collaborative because of my interest in the pulmonary outcomes of children born prematurely. As more infants survive the NICU with more severe lung disease, we recognize that there is a greater spectrum of pulmonary disease across the lifespan.

 Paul Moore, MD  Treasurer
Vanderbilt University Medical Center
Nashville, TN

I was fortunate enough to become one of the first members of this organization and now I serve on the Executive Board. The work product from this group is defining the standard of care for these infants. I am very proud to be part of this endeavor.
I was fortunate enough to become one of the first members of this organization and now I serve on the Executive Board. The work product from this group is defining the standard of care for these infants. I am very proud to be part of this endeavor.

Milenka Cuevas Guaman, MD Secretary
Texas Children’s Hospital
Houston, TX

Laurie Laurie Eldredge

         Laurie          Eldredge, MD
   Seattle Children’s  Hospital
  Seattle, Wa

Through the Collaborative, I have gained knowledge and expertise in caring for infants with severe BPD. I work with members to improve outcomes of infants and children with severe BPD.
Through the Collaborative, I have gained knowledge and expertise in caring for infants with severe BPD. I work with members to improve outcomes of infants and children with severe BPD.

Winston Manimtim, MD
Children's Mercy Kansas City
Kansas City MO

The BPD Collaborative

Martin Keszler, MD
Brown University
Providence, RI

The BPD Collaborative

Sharon McGrath-Morrow, MBA, MD
Children’s Hospital of Philadelphia
Philadelphia, PA

I am part of the BPD Collaborative because I want to provide the best care for our patients with severe BPD and the BPD Collaborative provides a platform to gain insight on others’ successes and challenges and ways, we can overcome barriers to deliver optimal care.
I am part of the BPD Collaborative because I want to provide the best care for our patients with severe BPD and the BPD Collaborative provides a platform to gain insight on others’ successes and challenges and ways, we can overcome barriers to deliver optimal care.

Pamela Griffiths, MD, FAAP
 Phoenix Children's Hospital
              Phoenix, AZ

I am actively involved in the education of the nurses and mentoring trainees on projects related to BPD. The most rewarding part of caring for this patient population is witnessing the steady improvement of these children from critically ill to healthy and developing at home.
I am actively involved in the education of the nurses and mentoring trainees on projects related to BPD. The most rewarding part of caring for this patient population is witnessing the steady improvement of these children from critically ill to healthy and developing at home.

Robin McKinney, MD
Brown University
Providence, RI

The BPD Collaborative has provided me opportunities to connect with colleagues across the nation and the world, participating in working groups that address specific areas of BPD as well as be involved in research opportunities and quality initiatives for my own institution.
The BPD Collaborative has provided me opportunities to connect with colleagues across the nation and the world, participating in working groups that address specific areas of BPD as well as be involved in research opportunities and quality initiatives for my own institution.

  Sarah A.K. Heinonen,              DNP, APRN
    Children's Hospital                   Los Angles
      Los Angeles, CA

Susan Gage

Susan Gage, MD
Children's Hospital of Orange County
Orange, CA

With the aim of improving the long-term neurological and pulmonary outcomes in these patients. The mainstay of our mutual efforts have focused on all needs of these patients with therapeutical strategies involving multidisciplinary teams.
With the aim of improving the long-term neurological and pulmonary outcomes in these patients. The mainstay of our mutual efforts have focused on all needs of these patients with therapeutical strategies involving multidisciplinary teams.

Richard Sindelar, MD, PhD
University of Uppsala Department of Women's and Children's Health
             Uppsala, Sweden              (non-voting member)

Erin Iozzi

Erin Iozzi
Parent Advocate
(non-voting member)

Org Chart

Standing Committees

  • Advocacy Committee – advocate for patients and families with sBPD at the community, regional, state, and national level.
  • Data Committee – oversee access to the BPD Collaborative Registry and development of the research program.
  • Education Committee – development and implementation of educational content and curricula.
  • Junior Faculty Development Committee - Responsible for developing and implementing programs to ensure junior faculty members of the BPD Collaborative can reach their goals.
  • Membership Committee – responsible for recruiting and recommending new full member institutions to the Steering Committee for vote. The committee is also responsible for the recruitment and approval of new Associate Members.
  • Website Committee – responsible for the BPD Collaborative presence on the internet and social media.

Ad Hoc Working Groups:

Epidemiology and Definitions

Pharmacology

Nutrition

Pulmonary Hypertension

Ventilator Strategies

Nursing Bedside Team

Outpatient Transition

Neuro Developmental